Pediatric Stroke Resources

Updated:Sep 2,2014

International Alliance for Pediatric Stroke (IAPS)
The International Alliance for Pediatric Stroke (IAPS) was created to unite pediatric stroke communities around the world. IAPS provides knowledge, hope, resources and the connection between families, medical specialists, researchers, healthcare providers and anyone affected by pediatric stroke. Our mission is proudly supported by leading pediatric neurologists and all of our information is approved by the physicians on our board.

Thanks to IAPS' hard work, expertise and incredible dedication to spreading pediatric stroke awareness, AHA/ASA and IAPS have released new pediatric stroke tools:

Brendon's Smile
Brendon’s Smile provides opportunities to advocate and raise awareness among the general public locally and online. Sponsors the “Annual Brendon’s Smile Foundation Lecture” at the Washington University School of Medicine in St. Louis, MO to educate the medical community about pediatric stroke. Annual fundraisers include “Take me out to the Ballgame” at Bush Stadium and the September Rally/Walk in St. Louis. Collaborates with other pediatric stroke organizations to promote awareness, advocacy and encourage research.

Children's Stroke Foundation
The Children's Stroke Foundation has a simple mission: to educate doctors throughout the United States about Pediatric Stroke. The Children's Stroke Foundation has partnered with the US leader in Pediatric Stroke, Boston Children's Hospital. Their model program will teach, and be used as a resource for, other hospitals while implementing their own programs.

Bellaflies Foundation
The Bellaflies Foundation is a 501(c)3 non-profit foundation that is dedicated to “Making a Positive”. Their mission is to spread pediatric stroke awareness, support children's hospitals, and work to advance pediatric stroke research in medicine and testing worldwide. All proceeds from their annual Strides for Strokes goes directly to support their mission through collaboration with other pediatric stroke organizations who further research, awareness and education.

Colorado Pediatric Stroke: Parent Support Group (CPSPSG)
CPSPSG offers local monthly support group meetings to provide support, education, and advocacy for families impacted by the range of outcomes of all types of pediatric strokes.

I am Jayden Foundation
I Am Jayden Foundation's mission is to spread awareness about pediatric stroke and become a source of funding for organizations/foundations/survivors who are associated with pediatric stroke. Funds go towards helping families or organizations who need financial assistance to better the lives of pediatric stroke survivors.

Pediatric Stroke Program at the Children’s Hospital of Philadelphia
The Pediatric Stroke Program at CHOP offers pediatric stroke awareness through their extensive family support program. They provide a multidisciplinary team approach in a hospital setting. The pediatric stroke program includes community outreach, meetings/conferences, assistance with the child’s education plan and quarterly newsletters.The hospital is located in Philadelphia, but anyone worldwide who is interested in their hospital services or getting involved in pediatric stroke activities is welcomed.

Sickle Cell Disease Association of America
The SCDAA's mission is to promote finding a universal cure for sickle cell disease while improving the quality of life for individuals and families where sickle cell-related conditions exist.

This content was last reviewed on 8/08/2014.

Stroke Warning Signs and Symptoms

Let's Talk About Stroke Fact Sheets

Stroke fact sheets

Our stroke fact sheets cover treatments, recovery, prevention and warning signs. These sheets will help you take action to reduce your risk and understand your condition. 

 


Find and Give Support

Visit our Support Network today

When faced with challenges recovering after heart disease or stroke, it’s important to have emotional support. That is why we created a network to connect patients and loved ones with others during their journey. 

Psychological Issues after Pediatric Stroke: What to Expect

The mental and emotional impact of a child having a stroke effects everyone who loves them. How cognition and behavior have changed tend to be discovered over time. Learn what to expect immediately after diagnosis and beyond.