Over the decades, we’ve talked with many stroke families, and many of their stories start this way – In the beginning there was fear, and the fear was overwhelming. After the fear comes courage. Then there is the gaining of knowledge about stroke, rehab and recovery, which is individual and unique. And then finally, there is perseverance. We talked with psychologist Barry Jacobs about how not to be overwhelmed by the overwhelming. In addition two long-term caregivers – Marilyn Manno of New York and Janet Scott of Dallas – shared their experience of getting through the initial shock of a spouse’s stroke.
Other articles include:
More people are having strokes at younger ages. Younger survivors will likely live with the consequences of their strokes for decades longer than those who survive strokes in their 70s and 80s. Survivor Carol Keegan of Silver Spring, Md. shares her experience of living 40 years post-stroke. We also interviewed physiatrist Payal Fadia of the Shepherd Center in Atlanta about what long-term survivors need to know.
Joanna Kraus of Walnut Creek, Cal. speaks candidly about her experience as a caregiver in her 70s struggling to take care of a survivor husband in his 80s. In addition she shares invaluable survival tips for caregivers of all ages.
The fourth in our series assessing the changes in the world of stroke looks at advances in post-stroke depression and treating pseudo-bulbar affect as well as the impact of stroke support groups on quality of life for stroke families. We talked with physiatrist Brendan Conroy and neuropsychologist William Garmoe, both of the National Rehabilitation Hospital in Washington, about changes in post-stroke care.
Comedian John Kawie’s unique perspective on survival. This month in “Isn’t It a Pity,” John recounts dealing with a friend’s condescending mother.
Stroke Notes features ‘newsy’ stroke-related information on stroke research, risk reduction, ASA events, advocacy efforts, etc. This issue we highlighted several studies from the International Stroke Conference.
Readers Room features personal stories, letters, poems and artwork from stroke survivors and family caregivers. In this issue:
Everyday Survival looks at tips, gadgets and apps for managing daily activities from occupational therapist Carol Siebert of Chapel Hill, N.C., our resident expert on making life easier - and an online extra listing handy and helpful mobile apps for stroke survivors.