Despite the fact that family caregivers provide care valued at $375 billion a year, very few of them receive training for this crucial job. This lack of training results in tremendous stress as well as being potentially detrimental the health of the caregiver and recovery of the survivor. We talked to caregiver Donna Allen of North Carolina about her experience. We also talked to Jan Skaggs, a caregiver training specialist at the Prescott Valley Area Agency on Aging in Flagstaff, Ariz. about how to get training in the physical requirements (transfers, dressing, toileting, etc.) of caregiving. In addition we spoke with Dr. David Coon, a gero-psychologist and professor in the College of Nursing and Health Innovation at Arizona State, about the psychological rigors of caregiving and what can be done about them.
Fatigue after Stroke
Fatigue is a common complaint following stroke, although not well understood by patients, caregivers and the medical community. The condition can have a severe functional and social impact, and patients vary in the type of fatigue they experience. Physical therapist Allison Lichy of Alexandria, Vir. outlines this problem, explains its several causes and provides practical tips survivors and caregivers can do to ameliorate it.
On Bubbles and Force Fields
Survivor Kriste York of Corvallis, Oregon writes about the experience of having her bubble of safety and appreciation burst at a local mall when an adolescent boy taunted her. In the article we follow her ruminations on this event and how the force field of love and appreciation her mother and daughter provide give her the psychological space to recover and be herself in the process.
Life at the Curb: Get Back
Comedian John Kawie’s unique perspective on survival. This month in “Get Back” John revisits the rehab unit where his recovery started.
Everyday Survival features a list of eight books on stroke recovery and life after stroke, from survivors and caregivers as well as medical experts.
Stroke Notes features ‘newsy’ stroke-related information on stroke research, risk reduction, ASA events, advocacy efforts, etc.
Readers Room features personal stories, letters, poems and artwork from stroke survivors and family caregivers.