SCM Winter 2014

Updated:Mar 6,2014

Winter 2014 Cover - Moyamoya Disease
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A Puff of Stroke
There are many causes of stroke, but surely one of the most unusual is moyamoya disease. Moyamoya is a vascular disease for which the first symptom is typically an ischemic stroke or TIA. Although adults can have it, it is more common in children (age 2-5, although any age is possible). We talked with Dr. Ed Smith, a pediatric neurosurgeon and co-director of the Neurosurgical Stroke Program at Boston Children’s Hospital. Dr. Smith specializes in the treatment of moyamoya and other vascular diseases of the brain. (“Moyamoya” is Japanese for “puff of smoke, thus the title.) In addition to interviewing Dr. Smith, we profiled families of four children who’ve experienced the disease.
 

Other articles include:
 
Covering All Americans – Understanding New Coverage Options for the Uninsured 
The American Heart Association's Stephanie Mohl, Government Relations Manager, outlines the Affordable Care Act and answers some questions pertinent to stroke families.

Survive, Thrive and Lead
Dr. Donna Arnett, immediate past president of the Association, was the first president who was also a stroke survivor. We interviewed Dr. Arnett about that experience, which happened back in 1968 when she was 27 years old.

Growing up in a Stroke Family
Studies indicate that stroke is happening to younger people more often than even a generation ago. As a result, more children are being raised in stroke families. And we’ve talked to enough survivor and caregiver parents to know that they are concerned with how the stroke affects their children. With that in mind, we talked with Ashley Park Pryor and her sister Lisa about their experience growing up in a stroke family. Their father, Steve Park, had a ruptured AVM and brain surgery when they were ages 5 and 3 respectively.
 
 
Departments:
 
Life at the Curb
Comedian John Kawie’s unique perspective on survival. This month in “Stranger in a Strange Land,” John recounts his first weeks after leaving inpatient rehab.

Stroke Notes features ‘newsy’ stroke-related information on stroke research, risk reduction, ASA events, advocacy efforts, etc. In this issue:
 
- Hypertensive retinopathy may hold clues to stroke risk
- Early brain stimulation may help stroke survivors recover language function
- In mild strokes, ultra-early treatment may eliminate risk of disability


Readers Room features personal stories, letters, poems and artwork from stroke survivors and family caregivers. In this issue:

From Wheelchair to Corvette, survivor Bill Perrick of Woodstock, Md. Tells how he progressed from living in wheelchair to driving his beloved Corvette. 
Reinventing Myself, survivor survivor Denice DeAntonio of  Fleetwood, Penn. talks about finding a new purpose in life after a stroke in her 30s.

Everyday Survival looks at tips, gadgets and apps for managing activities of daily living.

 
 
 
 

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Get quarterly digital issues plus our monthly SC e-Extra absolutely free! Our latest issue highlights when adult survivors depend on their parents; Managing risk of another stroke; Finding your motivation; how to fold laundry with one hand and much more!  
 
Have you seen Stroke Connection’s humor column, Life At The Curb? Brain Freeze, John Kawie’s award-winning one-man show is now available on DVD. Now you can have John in your home and help support Stroke Connection! Order yours today at brainfreezedvd.com (opens in new window).


For every Brain Freeze video sold from 8/1/10 through 7/13/15, and after the recovery of startup costs, Parma Recordings will donate 17% of the retail sales price to the American Stroke Association. Brain Freeze contains adult language and situations that may not be suitable for all audiences.

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